The idea for The iBellieve Foundation has built up over the last few years with my involvement in the MPS and rare disease community, beginning with my charity Bike 4 MPS ride down Vancouver Island in summer of 2002 as well as participating in a clinical trial for the weekly Enzyme Replacement Therapy (ERT), Elaprase that I now receive.
I truly believe that having MPS II Hunter syndrome is my calling to make change in the lives of those with or may be affected by MPS II, MPS diseases, and all Lysosomal Storage Disorders.
We can. We do. We will.
iBellieve. Do you?