Simon is the founder of The iBellieve Foundation – an organization dedicated to finding a cure for MPS II – Hunter Syndrome and over 50 related Lysosomal Storage Disorders.  For more information on the foundation and how to get involved or donate, click here.

Simon has also launched the Be Fair 2 Rare campaign – a global movement seeking to bring awareness and advocacy to the rare disease community.  Largely centered around International Rare Disease Day every February, the campaign seeks to bring awareness to the general public, and advocates for policy changes in countries that do not adequately support the rare disease community.